Thank you for visiting the WDG Jr Myelofibrosis website. Our intentions in setting up and maintaining this website are three fold. First; we would like to honor and remember our father who lived a wonderful life for seventy years. Second; we have developed this site for families who are living with Myelofibrosis and are seeking information, chat forums and event listings and a better understanding of the illness. Lastly; we have designed a safe and easy method for visitors to make donations to help fight this disease.
As mentioned above; our mission is to bring attention to this disease, provide a place for families to learn more and communicate with one another and to help bring an end to Myelofibrosis. A victory in this battle could lead to saving lives on other fronts; Leukemia for one. There is a new organization that is helping fight the battle against Blood Cancers by helping people in need find bone marrow donors. Please check out Delete Blood Cancer's website. http://www.deletebloodcancer.org/
Once again your patronage is encouraged and appreciated. Thank you kindly and God Bless all those that are fighting.
There is no way to talk about Bill without a smile on one’s face. Bill was an original in everything he did. Family and friends knew him as a true “wordsmith”, making everyday conversation a treat and a journey into the imagination. Everything seemed special and nothing was “run of the mill”. He was born an optimist and his eyes were filled with hope, ideas and possibilities. When adversity reared its head, Bill was not concerned. He knew that all things would work themselves out as God intended. He accepted adversity and he viewed it as an opportunity to learn, to discover and to make right any mishap.
Growing up in
Once introduced to boating, Bill became an avid sailor. Bill’s wife Anne taught him of life aboard. Always the quick study, Bill became an able seaman with a remarkable knowledge of vessels stem to stern. His love of the sea and his travels in life led him from West Coast to East Coast.
In the East, Bill discovered more coastal treasures and he grew a special affinity for the waters of Cape Cod and
There is so much to tell of this man and his way. We feel that his spirit and his strength could help others. Our family is considering writing a Biography of the life and times of William Durand Grafton Jr. We think that there would be laughter and tears even for those who did not meet him. We appreciate your time and your consideration and we hope that you find strength in your walk. As our Family Crest reads; Virtus in Arduis… simply translated…Courage in Difficulty.
The real culprit in Bill’s fight was his bone marrow. The bone marrow had stopped making the red blood cells and the bone was scarring. Determined to march on and to find a remedy; Bill altered his diet, took Growth Hormones, tried Natural Remedies/Homeopathics and he visited Sainte Anne De Beaupre (a miracle Basilica in Quebec, Canada). A miracle did arrive in 2005 allowing Bill to live life “transfusion free” for twenty two months. This was a happy time for our whole family. Much was accomplished: travels, engagements and reunions.
In late August 2006, Bill had new symptoms that caused some concern. A seemingly harmless bladder infection would begin a string of new battles. These new symptoms called to order new evaluation from a host of new specialists. Upon making visits to his new doctors; Bill was diagnosed with Myelofibrosis. This diagnosis came in October 2006. Over the next few months, this advanced level of sickness would act rapidly. A continued attack of the bone marrow would now be accompanied by an enlarging Spleen. Bill would receive many blood transfusions over his last months and many times he would find he needed blood platelet transfusions as well. His spleen was getting bigger and it was “eating up” all of his platelets. A Splenectomy was discussed as an option but there were concerns as he now had an extremely low blood platelet count (blood clotting was in question). His chances of surviving the surgery (Splenectomy) was a major consideration for all the doctors involved. With a low blood platelet count, an enlarged spleen, low blood pressure and internal bleeding; the disease turned its attention to Bill’s liver. Bill’s liver numbers were now climbing and this brought new concerns to what may or may not be a viable option (the Splenectomy option was side-lined). Bill’s liver numbers did improve but his spleen continued to grow in size, his platelet count continued to decrease and a vicious cycle of blood transfusions and blood platelet transfusions ensued.
Sadly Bill lost his fight at 10:37am (EST) on January 18th 2007. Anne was by his side in the end. He battled bravely. Since his fight began and ended; we have learned a lot about this “orphan” disease. We have learned that there are only 200,000 reported cases of Myelofibrosis in the